Happy Monday, friends! Today, I have the privilege of getting to tell you briefly about a sweet little girl, named Nora.
This is Nora, and her daddy (look at that sweet smile!). I went to high school with Nora’s mom, Carrie, and we have been able to keep in touch since then even though we are both busy being grown-up moms now! Nora was born with a rare lymphatic malformation, which affects her face, tongue, airway and lungs. Because of this, she had a trach placed at birth to allow her to breathe, and a g-tube to help her eat. She is currently traveling to New York every six to eight weeks for surgeries with a doctor that has had great success with LM patients.
Nora is one year old, and having met her, I can tell you that she is such a little joy. She really smiles so often and her whole face lights up! She is an active little girl, and I am sure that her two older sisters keep her busy! She really is such a little light to those around her.
As a mom, Nora’s story hits home hard with me — Nora and her family have incurred many medical and travel costs as they have been on a long journey of care for Nora. Flying to New York frequently would be hard enough, but to do it with a little one year old who just wants to move around would make it even more difficult. Besides those larger trips for surgeries, the every day care that is needed by Nora is really a lot in addition to the normal care an active one-year old needs. I know we all complain when we have newborns that don’t sleep, but this little girl has alarms that go off in the middle of the night if her heart rate isn’t where it should be. Talk about restless sleep for both Carrie and her husband, and Nora.
Nora’s story is so inspiring to me for many reasons, but one reason is that I can see how God is working in Nora’s life and in the life of those who come in contact with her. I can tell you that if you met Carrie, you wouldn’t know that she is a mom struggling with a really difficult situation. She is bright, and cheery, and while maybe sleep-deprived, she is 100% focused on what her family needs. Not only that, but she isn’t sulking! Carrie is praying, and moving through life knowing that she knows a God who is stronger than the situation that they are facing. (You can read her blog here.) Carrie fully trusts that God has Nora in the palm of His hand, and while this may not be a situation she would have ever imagined herself in, she is confident that God is in complete control.
As you can imagine, this situation has not been easy for Carrie, her husband, or their other two young daughters. I have two questions for you, as a reader of this post:
1) Will you pray for Nora and her family?
God has performed many miracles in sweet Nora’s life already, and we are continuing to pray for many more! Prayer is the most powerful thing that we can do to show our support for Nora and her family.
“You knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be.” Psalm 139:13-16
Carrie wrote this on her blog last week: “Nora is fearfully and wonderfully made, and because God has all her days planned out, there is nothing for me to worry about. I may not understand the ‘why’ of everything, but I know it will be used for good. Thank you for coming alongside Nora and our family as we continue on this journey! I don’t know what we would do without you!! Please pray for continued healing and protection from any more infection/issues, and also for wisdom for the doctors as they make decisions regarding her care. Her heart rate was a little higher last night which can sometimes mean trouble-please pray she stays healthy!!”
2) Would you consider purchasing a t-shirt and/or donating money to help out Nora and her family with medical and travel costs?
Traveling back and forth to New York is expensive, and I can only imagine the medical bills that they have seen over the last year of Nora’s life. Finances can be such a stressful thing for a family, and I would love to be able to help them out in whatever small way that we can so they can at least cross that one concern off of their list.
I have set up a fundraising site here: Nora–Little Light of Mine Fundraiser
You can purchase a t-shirt on that site, that says “Fearfully and Wonderfully Made” (as little Nora most certainly is!) — there are both unisex and ladies fit options for the shirt. Any proceeds raised from the sale of these shirts will go directly to Nora and her family. If you also feel so inclined, there is an option to donate a set amount of money towards the family (they would receive every penny of that amount) as well. If you have any questions, please feel free to contact me at firstname.lastname@example.org, and I will be happy to help you.
My hope is that we can wear these shirts and show Nora and her family how much they are loved and being prayed for! This fundraiser will only be open for a couple of weeks, so make sure you check it now!
To keep up with Nora and what is going on in her life you can follow Carrie’s blog.
Thanks so much for being a part of this sweet little one’s journey — she is definitely so loved!
“The Lord is righteous in all His ways and kind in all His works. The Lord is near to all who call on Him, to all who call on Him in truth. He fulfills the desire of those who fear Him; He also hears their cry and saves them.” Psalm 145: 17-19